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A mom of a son with spinal muscular atrophy discusses how she supported her son's self-advocacy and encourages other caregivers to help their loved ones "live outside the bubble." (Quest magazine, fall 2011 issue)
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Breaking Down Barriers - NEW ARTICLE
What do you want to eat for dinner?” “I don’t know. What do we have?” This very common question and response is undoubtedly heard in many households on a daily basis. Whoever does the shopping and cooking has a pretty good idea what’s in the kitchen cabinets but, otherwise, each person generally goes and stares into the cabinets or refrigerator searching for a reply. Sometimes you’ll even catch...
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Did you know most people swallow an average of 580 times a day? For many with health issues, trouble with swallowing (dysphagia) can lead to malnutrition, dehydration, pneumonia, anxiety, depression, and isolation. Dysphagia affects 30-40% of those affected by Multiple Sclerosis, as well as 40-50% of patients in nursing homes, 13-14% of all hospitalized patients and nearly 33% of the patients in rehabilitation centers.
Can you imagine lying down and attempting to chew and swallow and enjoy food? You quickly become familiar with what you can and cannot chew and swallow. This is far from an ideal situation but it is an everyday hurdle for countless people. Preparation of meals can be a very complex issue.
Being mother, caregiver and cook for nearly 25 years for two sons with chewing and swallowing issues, I Can Eat That! offers a 250-recipe solution to the question, "What can I eat?"
In addition to being a wife and mother, I have been a full-time caregiver for family members enduring life-threatening illnesses. Several of these loved ones have passed on to be with God and I am now opening the door to new journeys. The road may be winding and difficult to navigate at times but I look forward to the rewarding possibilities along the way.
I am creating a "gallery" of sorts to highlight and remember the works of my youngest son, Joe.
I hope you enjoy seeing and reading his work.
More about him will be added on a regular basis.